We need a registry for malformations?

In just two months, Marien-Hospital, Gelsenkirchen, Germany, arrived in Saint-Buer of three babies to the world, was formed in each of which a Hand missing. Previously, it had been there, according to the clinic for years, not a single such case. In the case of all three children, each a Hand was affected. This Hand-palm and fingers are created only in a rudimentary form.

Around 800 babies born in the hospital per year, the light of the world. The risk for such malformations appreciate physicians to to 1 : 32,000. The power of 3 : 800 to an eye-catching accumulation. Especially since this year, in dates and Dorsten, i.e. in the immediate vicinity of Gelsenkirchen, two other children with similar malformations were born, how the regional Newspapers of the Funcke-group reports.

Now Calls for a Central register of louder, because so far, in Germany there is no systematic recording of such cases. No one seems to be able to answer a simple question positively: Is this normal or cause for Alarm?

Also, the Federal Ministry of health, Jens Spahn (CDU) has the specific cases so far, “no findings,” said a Ministry spokesman in Berlin on Saturday. But: “If there should be a striking clustering of malformations in the newborn, it must be clarified as quickly as possible.”

The Ministry will welcome the fact that the hospital have contacted the Berlin Charité. The clinic has also announced an in-depth research into the causes, which, however, could take place only with the consent of the parents.

What is normal?

The causes of such malformations are not understood in their entirety, but can also be varied. In the discussion of physical causes, such as the Disconnection of the blood supply in the limb during embryonic development, but also genetic or toxic causes, or even the influence of specifically-acting viruses. Basically, so everything is possible, and also the random accumulation of counts is quite.

The only Problem is that you can’t tell without reliable data, the random of the eye-catching, suspect accumulation. The SPD-health expert Karl Lauterbach called on the Minister of health Spahn now, “to give urgent study, which systematically recorded the data of the clinics and the frequency of the cases”.

The now wants to Westphalia, the Ministry of health of North Rhine-Westphalia. The Ministry will query all the hospitals in NRW, whether there are similar malformations were noticed, said a spokeswoman for the düsseldorf authority on Saturday at the request of the DPA news Agency. You take the reports of the cases “very seriously”.

“In addition, we make contact with the chambers of Physicians, the Federal government and the other länder, to possible causes, with all due diligence, to investigate,” said the Ministry spokeswoman. Whether or not a register is the right way, it is vital to check together.

Your boss, the NRW health Minister Karl-Josef Laumann (CDU), warns, however, before speculation about possible causes: “Rather, the possible causes with the due diligence needs to be investigated.”

The Status Quo: Very incomplete knowledge

The Federal Ministry of health, said that there was a need for both data from the perinatal statistics, as well as from the statistical report on Hospital diagnoses. The term perinatal means in medical parlance, the period just before, during and shortly after birth on.

A national malformation register does not exist so far. There is, however, meaningful data for individual years. According to a Federal evaluation of the perinatal statistics of the Institute for quality assurance and transparency in health care in 2017, had been in Germany 6884 children with malformations born. Thus, about 0.89 percent of newborn malformations were more affected. The perinatal statistics according to the Ministry, however, only the number of malformations in children born, it contains no information about the type of the malformation.

Further information about the Failed type of training includes the hospital diagnosis statistics from the Federal Statistical office. These give information about the number of in-patient treatment cases with a specific diagnosis. This statistics includes no information about the number of people treated, informed the Ministry of health in Berlin. This means, a child will twice treated in hospital, would be counted as two cases. At the same time, children didn’t show up without in-patient treatment in the statistics in the first place.

Regional data are collected according to the Federal Ministry of health for the malformation register, Saxony-Anhalt and the birth registry “Mainz model”. Data from two regional registers would be reported to the European registry EUROCAT, the since 1979, and currently, data from 23 European countries included.

Why clusters make for restlessness

That any conspicuous accumulation of such abnormalities provides, in babies for restlessness, is not surprising. After the drugs scandal of the sedative thalidomide in the beginning of the Sixties years. In pregnancy severe deformities it has caused, in Germany and in several thousand cases.

In the English Corbyn 19 babies with malformations to the world came in the mid-Nineties, after there probably toxic industrial waste has been improperly disposed of. For final clarification it was not, because the process ended with an out-of-court settlement.

The last incidence of such malformations is less long. In three rural French circles in France, at least 25 children with such malformations have been in the autumn of the year 2018. Even there, the policy was under pressure to record the events systematically, the investigation is still ongoing.

In England it is speculated that industrial poisons be the reason for the malformations, in France, insecticides and plants are suspected protective agent. Gelsenkirchen-Buer, Dorsten and dates are there between the worlds: The communities lie on the Northern Ruhr area, where industrial meets farm country.